Update

Sorry I'm behind in blogging. I feel like my life consists of driving back & forth to the hospital, pumping milk, and dealing with a whiny 15 month-old. I think I'm still in a daze and not sure how to get back to normal life. What is normal life even like when you have a baby in the NICU for an indefinite amount of time???

Anyway, on Friday they did a trial run of taking Matthew off his heart med (the one that keeps the arteries to the lungs open). It did not work. After about 5 hours of being off it, his vitals were going up and down and he needed oxygen to keep his numbers at acceptable levels. So they put him back on it. He's still on the lowest dose and they want to try again tomorrow, but I've lost hope that it will work. I was so hoping that he would be able to come home before any major surgeries, but it looks like we'll be talking about heart surgeries in the coming weeks.

I sat with him for about 2 hours this morning and he looked really good. I was able to hold him, change his diaper, and he even opened his eyes for me! It was a nice Mother's Day treat :) On that note: Happy Mother's to Momma, Dana, Mamie, and Granny!