Not a lot has changed with Matthew, but here are two pieces of relevant info. First of all, he does not have a spleen. Almost all of his organs have been affected in some way or another by his condition, but they just discovered yesterday that his spleen was non-existent. The spleen plays in important role in the immune system, as well as recycling old red blood cells and holding a reserve of blood. Because he does not have one, he will have to take an antibiotic every day for the rest of his life - a simple but annoying fix. So that's the bad news.
The good news is that he is totally off prostaglandin and all other medicines involved in keeping his oxygenated blood levels up! It seems his body is able to do this on it's own. His nurses are also hopeful that he will be able to go off the ventilator later today. This would be wonderful because it's very uncomfortable and they've had to tie his hands down to prevent him from pulling it out :( Poor little guy.
I sat with him for an hour and a half this morning and he blinked his eyes open every now and then, but he's pretty sedated still. Cole and Claire left last night, so for now it's just me keeping him company.
poor sweet matthew! glad to hear the good news. we are still praying for you guys. sure wish i was there to keep you company. thanks for keeping us updated. love that little matthew!
ReplyDeleteThe wonderful thing is, it is not only the two of you, but also Jesus that is holding the two of you in His arms and who loves Matthew more than anyone could ever. I look every day to see what your update is. Thank you so much for sharing with us Julia and keeping updates on precious Matthew. You are loved!
ReplyDeleteJulia,
ReplyDeletePraising God for the good news and thankful the "bad" news can be taken care of with meds. I pray continually for a "remarkable" recovery that all involved would see God's healing hand in this sweet little boy. Thank you for taking the time to update your blog.
I continue to pray for all of you!
Carol Agate
Julia,
ReplyDeleteI've been praying fervently for you and Cole over the past few days. I'm so glad that Matthew is doing well considering and that he is off the meds:) Thats great news!!!! I never thought you could be born without a spleen but if there is medicine I guess it's a pretty commen thing:) Ryan and I love you guys and pray for you daily. Let us know if there is anything we can do for you!
Meredith K
We are rejoicing with you as God takes you step by step through this difficult time. We praise him for the abilities he has given the medical professionals, the healing that is taking place in sweet Matthew's body, and the love,strength, and faith that he is building in you and Cole.
ReplyDeletePraying that you will feel an overwhelming sense of his presence and peace, knowing that his angels are encamped around you.